3q29 microdeletion syndrome
Our conditions
Welcome on our place especially for care-intensive people.
WaihonaPedia responds to the needs of rare 'care-intensive people’ and their families, caregivers, teachers, doctors and therapists. These needs are;
- personalized information based on best available information and experiences of others,
- connection,
- asking questions and getting answers
- plan for the best possible quality of life
We do this by supporting people around the many conditions that impacted the life of these people. Explore these conditions so you can see and learn, know and share. Can't find the condition you're looking for? Request this to be supported
Welcome on our place especially for care-intensive people.
WaihonaPedia responds to the needs of rare 'care-intensive people’ and their families, caregivers, teachers, doctors and therapists. These needs are;
- personalized information based on best available information and experiences of others,
- connection,
- asking questions and getting answers
- plan for the best possible quality of life
We do this by supporting international communities for these people. Explore the communities that already joined below to ho you can see and learn, know and share together with one of our communities. Can't find the community you're looking for? Request this to be supported
Our communities
Dementie en verstandelijke beperking
Rubinstein-Taybi syndrome
Williams-Beuren syndrome
Zeldzame aandoeningen in het algemeen
Angelman Syndrome
Autism Spectrum Disorder
Cornelia de Lange syndrome
CREBBP/EP300 Exon30/31
Down Syndrome
Kabuki Syndroom
Kleefstra syndrome
Malan syndrome
Marshall-Smith syndrome
Nicolaides–Baraitser syndrome
Pierpont syndrome
Primrose syndrome
Pitt-Hopkins syndrome
Syndrome van Sturge en Weber
SATB2 syndrome
Tubereuze Sclerose Complex
Wiedemann-Steiner syndrome
