Stories by you, involved by rzadkie schorzenie, are very important to us. We listen to all the stories. We might learn from you and/or understand the struggles you are going through. Your story might be relevant to others that are also involved with rzadkie schorzenie. In this way we want to connect families, let them laugh and relax or give them just that little bit of support. Because if there is something important for families with a care-intensivecare-intensive: a lot of care is needed. A care-intensive child is a child with a physical, mental or behavioural disability (or a combination thereof) that requires extra care. 16 listopada – 13 lutego 2020 Hotel Restaurant Oud London Zeist Hotel Restaurant Oud London in Zeist is een unieke en sfeervolle congreslocatie, op slechts 15 kilometer van Utrecht en Amersfoort
care-intensive: a word that we came up with, with which we focus on the experience of the care with rzadkie schorzenie rather than the diagnostics. child like rzadkie schorzenie, it is that the family remain upright. And that is what we, as community around rzadkie schorzenie, are committed to help and listen to you with heart and soul.
Communicatie, van levensbelang voor het Angelman Syndroom
Angelman Syndrome (as)
Took place from 16 lis 2019 to 13 lut 2020
Vereniging Angelman Syndroom Nederland
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