Stichting Rubinstein-Taybi

um lugar para ver, falar, aprender e partilhar !

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Histórias de experiência

Share your stories and hear those of others

RTS is a long journey; sometimes difficult but often you arrive at a sunny place. Talking about it helps you cope with the journey.

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Meeting others

There are others in the same situation as you. If you connect with us we can help you find them. Maybe you want to meet someone with similar experiences.

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Pergunte ao perito

Ask our experts

We all have questions on the care and wellbeing of our loved ones with RTS. Search the questions others have asked before. No question is too big or too small to ask.

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Comunidade

Onze missie

"Wij zetten ons in om bij te dragen aan een accurate diagnose van problemen bij mensen met Rubinstein Taybi, om onderzoek naar aspecten van Rubinstein Taybi te ondersteunen, om mensen met Rubinstein Taybi te helpen en om hun ouders, broers en zussen, grootouders, families, verzorgers en artsen te helpen weloverwogen beslissingen te nemen."

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A nossa visão

Our movie

Rubinstein-Taybi Syndrome (RTS) is difficult to understandThe best way to find out is by watching our introductory video.

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Toda a informação contida neste WebSite é apenas para fins educativos. O local para obter aconselhamento médico específico, diagnósticos e tratamento é o seu médico. A utilização deste site é estritamente por sua conta e risco. Se encontrar algo que considere necessário corrigir ou esclarecer, por favor informe-nos em: 

Envie um e-mail: info@rtsyndroom.nl