Why should you sign up?


We are all involved with someone with Rubinstein-Taybi syndrome (RTS) for different reasons; we have it, we are parents, siblings, we are families or friends, we care for someone with RTS, we are doctors, we are teachers, we are curious. ..

And because we are, we understand the importance of sharing our experiences and knowledge!

You too have something to share, maybe just to let you know you are 'involved' ... but by seeing (reading), talking (writing), learning and sharing again we will make life with RTS more beautiful, that's our dream.

So join our community, it's free and commits you to nothing!

WaihonaPedia for families

 

1

Your Story

Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!

2

Discover

Discover a community of like-minded people and find support along your quest. Otherwise, start a community of your own - we'll help you. Either way, you are not alone!

3

Join

Become an active member of your community. Share, discuss, ask questions and contribute. Everyone knows something, together we know everything!

Member!

Support our work

With your one-time donation, you will contribute to the advocacy of persons with RTS. We are very grateful to you for this!

You can also opt for a donor membership of the Rubinstein-Taybi Syndrome Foundation. You will then receive the beautiful glossy EnzovooRTS twice a year and you are welcome to attend the information and family days of the RTS Foundation.

Support us by your donation!

 

À propos du contenu du site Web

 

Toutes les informations contenues dans ce site Web sont uniquement destinées à des fins éducatives. Pour obtenir des conseils, des diagnostics et des traitements médicaux spécifiques, adressez-vous à votre médecin. L'utilisation de ce site est strictement à vos propres risques. Si vous trouvez quelque chose qui, selon vous, nécessite une correction ou une clarification, veuillez nous en faire part à l'adresse suivante : 

Envoyez un courriel : info@rtsyndroom.nl