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Your Story
Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!
We are all involved with someone with Rubinstein-Taybi syndrome ( RTS) for different reasons; we have it, we are parents, siblings, we are families or friends, we care for someone with RTS, we are doctors, we are teachers, we are curious. ..
And because we are, we understand the importance of sharing our experiences and knowledge!
You too have something to share, maybe just to let you know you are 'involved' ... but by seeing (reading), talking (writing), learning and sharing again we will make life with RTS more beautiful, that's our dream.
So join our community, it's free and commits you to nothing!
With your one-time donation, you will contribute to the advocacy of persons with RTS. We are very grateful to you for this!
You can also opt for a donor membership of the Rubinstein-Taybi Syndrome Foundation. You will then receive the beautiful glossy EnzovooRTS twice a year and you are welcome to attend the information and family days of the RTS Foundation.
info@rtsyndroom.nl