WaihonaPedia

What is WaihonaPedia?

WaihonaPedia is a well-secured online platform that supports patient organizations in managing their community. It is your ultimate solution for individuals with rare diseases and their families. It provides a safe environment for sharing information, organizing peer support, arranging contact with experts, and documenting accumulated knowledge and experience.

Join our international community today and experience the power of connection and knowledge-sharing!

Network

WaihonaPedia offers global online communities where people can connect around issues that impact them while living with a rare condition.

Knowledge

We build up knowledge by gathering, sharing and preserving information and experiences to improve the quality of life of people around a rare condition.

Connection

WaihonaPedia is a safe meeting point where you can meet others like you. Learn from and support each other.

WaihonaPedia for Communities

Engage

Discover a new way of working that optimizes the sharing of information, organizing peer contact, and preserving acquired knowledge.

Refocus

Supporting your community through our platform will save you time, money and efforts. Refocus on what really matters: your members!

Cooperate

Benefit from working together with others. Learn from each other and use each others knowledge to strengthen your own community.

WaihonaPedia for families

Your Story

Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!

Discover

Discover a community of like-minded people and find support along your quest. Otherwise, start a community of your own - we'll help you. Either way, you are not alone!

Join

Become an active member of your community. Share, discuss, ask questions and contribute. Everyone knows something, together we know everything!

Nuestra comunidad Mundial

There are many people living with rare conditions that impact your well-being. This raises specific questions, such as: "Is treatment/healing possible, what does this mean for care and support or where can I get (financial) help?". This information is often difficult to find or not appropriate to personal circumstances.

Participación Mundial

Comunidades: 14

Países: 33

Personas: 493

Condiciones: 22

Centros expertos: 16

Nuestros amigos

Nuestra visión

Together for Rare

We can improve the quality of Life enormously by sharing our experiences!

Watch the dreams of Linda, Ingrid and Gerritjan

Si está interesado en descubrir cómo puede ayudarle WaihonaPedia,

por favor, póngase en contacto con nosotros por correo electrónico.

o por teléfono (+31) 6 57 72 94 39

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